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Struggling with Celiac

I have been sick and depressed which is why I have ignored my blog.

I am struggling with Celiac disease. I hate it. I feel trapped. I know intellectually what to do and what kind of attitude I should have. But right now I am just not there. I am depressed, fatigued and I feel pretty hopeless. In fact so much so that I went on a Gluten binge last week. I ate Big Macs, Pie, Dorritos and Cake. I felt so naughty getting away with my Gluten food and no one knew. It was like a high I was on. The food tasted great. I was out of control. I knew I would pay for it but I didn't care. I felt like I just couldn't stop. It also made me feel normal again. I hate to use the word normal but I think you know what I mean.

I know some of the depression is from recovering from surgery the past 4 months. And what a nightmare my surgery and then complications were. My surgery wasn't the kind where you get up and get moving. It was the lie in bed for months and hopefully heal.

I don't personally know anyone who is going through this that I could talk to. You need that. Also I just ordered a lot of Gluten free food and was so disappointed with some of it. The bread like products just taste weird to me. They just don't taste the same. All the bread products are dense, thick and heavy. They are not light and fluffy. And since I don't have the right attitude I am not probably keeping my options and opinions open.

I think I am making this more difficult than it needs to be. But how do you force yourself to feel and think positive when you just can't right now. I did find a local support group and I hope that gives me the push I need. Anyway I am struggling right now and hope the struggle ends soon.

Comments (5)

I love ya honey. I just think sometimes that you are making things harder for yourself than it needs to be.

Kymberly:

Yes I agree, you just need to say it out loud/or get it out sometimes.

Kate:

I was just diagnosed with celiac. I am also struggling with it because nothing seems to taste right and I feel like I'm starving to death. If you want to chat and vent with someone who's going through the same thing, email me. People who don't have celiac don't understand. They think you're just on a diet and how hard can it be. I lived off of cheese steaks, pizza and beer. Now I'm trying to get used to this gluten free stuff. You're right, it tastes just plain weird. Message me, we should chat because I understand what you're going through.

I just came across your blog . . . and I totally understand how you feel!!I hope you are able to move on and feel better very soon. I actually have a gluten free blog and soley review GF products. I would love to read your opinions, or maybe you could find something you'd like to try . . . in the meantime, I hope each day is better than the last.

How one copes ...

It is, definitely, a disappointment and a limitation, and I'm not going to tell you that there are any good substitutes for fine wheat bread or pastry.

However, while some may find this surprising, you may find that Mediterranean cooking is a rich source of ideas; it's not all pasta, as many imagine. Many of the sauces are thickened by reduction, the adding of egg yolks, or other means that do not involve the use of roux or flour in any forum, and are full enough of flavor that in time, you may find that you don't miss bread as much as you used to.

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This page contains a single entry from the blog posted on June 21, 2007 10:19 PM.

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